Tuesday, October 20, 2015

Uncontrollable Meltdowns

I have been having a very time with Logan this past week. Logan has mild Autism, but it seems like as he gets older it worse. He just recently started having major meltdowns and I had no idea why. Its mostly at night when it is time for bed. He will scream at the top of his lungs cover his ears and hit me call me stupid tell me to shut up and hit the wall, really hit everything around him and this goes on for hours. I have tried everything that I can think of  and it is getting to the point of my sanity. I have been looking online and doing a lot of research and found another blog called my My Aspergers Child. I have found so much information by reading and seeing everyone's comments. Until now I had no idea about the laughing fits. He has them a few times a month he will just start laughing for no reason at all, we will be in the car driving and he will just start laughing. Logan has alot of medical problems he has Heart Disease and has had several open heart surgery's, he has epilepsy and his seizures were getting worse he would turn blue and barley breathing we have spent days in the hospital because of it. He is now on Depakene which is finally helping with the seizures but one of the side effects is liver damage and because of that he takes Carnitor to keep his ammonia levels down. We are always getting his blood work done.

He has been very unusually tired lately so I called his Neurologist last week and he just had his blood work done on Friday and now we are waiting on the results. Maybe I am seeing these meltdowns now because he has been so tired all of the time. Now the meltdowns are happening during the day. I have been homeschooling him for over a year now because his seizures were getting so bad. I have a call into his Neurologist hoping to get some help because at this point we both need it.
I have never cried so much in my life then I have this past week. Last night the meltdown went on for almost 2 hours, I just could not control him and I started to break down and cry then I was starting to have a panic attack and had a very hard time breathing. I am just so tired of all of the meltdowns it is a constant drain of emotional energy being a caregiver of a special needs child. I love my son so much and would and do everything humanly possible for him, I feel bad for my 14 yr old Daughters to listen to his screaming meltdowns and we all pray he does not have a seizure when he is done.

Lately it has been a fight to do schoolwork because he is so tired and fights me. As I type this he has been sleeping for more than 3 hours. I guess I just needed to vent here.