Wednesday, August 19, 2015

Thursday, August 13, 2015

Logan had his check up with his GI doctor today and everything is going good. He wants to keep him on the same formula at the same dose. He weighs 69lbs and growing fast. Could not get a height on him because he would not cooperate.

I received a call from his neurologist today for his blood results and it shows that his Ammonia levels are to high, which is why he has been very tired, and can also cause liver problems. To lower the levels they have to put him on Carnitor  100mg 3ml 3 times a day. The doctor has also lowered his dose of Lamictal to 100mg 1 tab in the morning and 1 1/2 tabs at night and she wants to keep Logan on the same dose of Depakote 250mg/5ml 2.5ml 3 times a day.
It's been a long time since he has been on meds 3 times a day.
Overall he is doing really good! Logan is 40 days seizure free! This is the longest he has been seizure free this year. I am hoping the new meds continue to work and he will not have any more seizures. Or at least really bad ones where he turns blue.
Every time his Dr adjusts his meds it always makes me nervous and scared. I don't sleep that good at night because I am always worrying about him :(  And always checking in on him and listening to him breathe through the monitor.
And Logan does not sleep that well at night always tossing and turning and waking up during the night.
All I can do is say my nightly prayers and thank God for him every night.

Wednesday, August 12, 2015

I can't believe it's been almost three months since my last post. Time has really flown by and so much has gone on. The summer is almost over and time for the kiddos to head back to school.
We celebrated Logan's 8th Birthday on Saturday with family and friends. So many people were there to make it special for him. It was a TMNT Party and I had a blast making everything for his party, I am not crafty so pinterest helps me out alot..Lol

The girls turned 14 in June and getting ready to start High School!! I can't believe how fast they have grown and they are so beautiful 😊

I will continue to homeschool Logan but by myself. K-12 commen core 1st grade will be to hard for him. He should be going into 3rd grade but is Developmentally delayed.

He has had alot more seizures these past three months and has been hospitalized several times. They have also changed his medications several times so we are hoping the new meds help him. Time will tell. I will post pics of his party this week.