Logan's Ammonia levels are way to high because of the depakote. Even after raising the Carnitor medication. So because of the Ammonia levels being to high it makes him very tired and he could have more seizures. But his liver function is good so I am so thankful for that. So Doctor increased his Carnitor meds even higher. We go back to get more blood work done next week.
I asked about other alternatives like a VNS implant but because of his heart Logan can not have it. We also asked about medical marijuana and because of his heart he cannot have it. And there has been no studies showing what the long term effect is on children. Logan has such a complicated heart it makes everything so hard . So we just take one day at a time. Logan's body is very sensitive to the depakote that's why his ammonia levels are so high. Not sure what our next step is or where we go from here we just have to wait and take one day at a time. The depakote is working because he has not had a seizure since July 3rd. It's just so very frustrating. Because the medicine is working but then on the other hand his ammonia levels are getting too high. 😢